Wednesday, March 7, 2007

He's how old??!!

Bubba is getting soo big!! He turned 9 months old last week! He had an appointment for some more immunizations (4 shots) and he weighs a whopping 20 lbs and is 26" long. He is babbling so much more now. One of my favorite things is when I sing to him, he "sings" with me. It's the cutest thing. He is still behind for his age...which is normal. He has rolled over from front to back but not from back to front. He has the motion of crawling down, but he just doesn't go anywhere. He looks like he's swimming, it's cute. We just started cereals and baby food. That has been quite interesting..the facial expressions alone are hilarious. Z starts physical therapy on the 15th. Im so excited to learn what I can do to help him get ahead.

I am doing better as well. I had another CT scan and the doctor said things are looking better. The clot seems to be dissipating. The new miracle drug I'm trying to get on is slow in coming, but everyday is one day closer. My doctors want to keep my hemoglobin above 14...they're hoping this will prevent me from getting more clots until the drug is available. But in order to keep it above 14 I have to have tranfusions regularly. Tomorrow I will go in for 2 units. (Please donate blood... you never know who's gonna need it) They have also ran my name thruogh the bone marrow transplant registry again, and as of late there are some potential matches!!

I had an interview for radiography school today. I'm hoping to get in. The hospital takes 10 students a year. It's a 2 year certified program through the local hospital. I'm just hoping that it works out. If I end up needing a bone marrow transplant though school won't be happening! I dont mind being sick so much as I hate how it makes me unable to plan anything. Anyway. just wanted to let those of you who read this that I'm alright. :) Hope you're all having a fabulous week.

5 comments:

Anonymous said...

Good news about the clot. Hemoglobin above 14? Is that possible ;-)?? I hope the transfusions leave you feeling great. And fingers crossed that eculizumab becomes available for you - -
Baby Zane sounds (and looks!) like such a cutie pie.
What a happy thing that he's coming along so well.
Keep us posted on how the PT goes - I know how good it feels when you can do something positive to help your little preemie along. You will be amazed at how well he responds!

Ne7erwinter said...

Thanx for your permission.. Now you are on my "Mis Amigos" list! :D

Take care. :)

Cathy said...

Hi,
I found your blog while I was searching for radiography, etc, so I thought I would introduce myself. My name is Cathy. I've been an RT for about 20 years and I now work for ASRT. So, if you have any questions about the field, we have lots of resources. Please feel free to e-mail me if I can help you. Good luck on your interview!! Cathy

Ne7erwinter said...

Hi, it's been a while... I see that you haven't been updating your blog either.

Hmm I've been tied up with something complicated, however, hoping everything's fine with you. :)

Take care.

Anonymous said...

People should read this.