Thursday, August 16, 2007

The means to an end?

Well Tuesday I got the call. The transplant coordinator said that they are trying for a transplant date of October 3rd. I would be admitted probably somewhere around September 27th to have all the chemo and such done before the actual transplant. I am both excited and nervous. This is what I've been waiting for, it's what I need to potentially be done with PNH! Granted it will most likely bring along it's own problems, but hopefuly they will be less threatening than the blood clots I have been having. I go in on Aug. 30th to have a pulmonary function test, EEG, EKG, Cat scans, xrays and blood work. They have to see that I'm healthy enough to have the transplant. Then September 10th I will meet with the Doc and go over my results and by then know the exact dates. I am trying to get everything situated. The bills, Z's therepy schedule (my mother is going to be watching him), Make some dinners and freeze them for B to have while Im gone for the 6- 8 weeks. I am printing out tons of pictures of my little man and the rest of my family to bring with me so I can at least look at pictures of my family while Im there. I will keep you all posted.

1 comment:

Anonymous said...

Oh wow -it's really happening! I will be with you in spirit as you go thru this process. Please keep us updated!